A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
New aHUS name it is like squaring the circle
Hey what's new? I have found out something new , did you know that aHUS is not the official name for…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
More countries for Global aHUS Town
Since our last report on Global aHUS Town very little has changed in the number of countries who are now aHUS…
Helping another TMA’s Initiative- CAPS
CAPS or Catastrophic Antiphospholipid Syndrome is an autoimmune and kidney disease which shares the same experience of thrombotic microangiopathy with aHUS/…
ERKNET and TMA patients in Europe
Very little is heard from ERKNet (European Rare Kidney Disease Network) these days. Global Action used to have articles about its…
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