More countries becoming neighbours in Global aHUS Town
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
A second article in a series of four planned has just been published. It is about the health economics of treatment…
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…
It is over a decade ago now but I still recall vividly when, at the first meeting of what would become…
India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…
Frequently these days people talk about their "journey". I have known of the journey of an aHUS patient in India for…