Thrombomodulin and TMA- complement inhibition or not?
It is said that thrombomodulin, or TM(AKA THBD) or CD141 plays only an indirect part in TMA ( thrombotic microangiopathy) .…
It is said that thrombomodulin, or TM(AKA THBD) or CD141 plays only an indirect part in TMA ( thrombotic microangiopathy) .…
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
A second article in a series of four planned has just been published. It is about the health economics of treatment…
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…
It is over a decade ago now but I still recall vividly when, at the first meeting of what would become…
India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…
Frequently these days people talk about their "journey". I have known of the journey of an aHUS patient in India for…
When it comes to advocacy why say there is aHUS and there is also aHUSs? The rare disease aHUS is described…