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eculizumab

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Read more about the article Thrombomodulin and TMA- complement inhibition or not?

Thrombomodulin and TMA- complement inhibition or not?

  • Post author:Len Woodward
  • Post published:September 7, 2025
  • Post category:Featured/News
  • Post comments:0 Comments

It is said that thrombomodulin, or TM(AKA THBD) or CD141 plays only an indirect part in TMA ( thrombotic microangiopathy) .…

Continue ReadingThrombomodulin and TMA- complement inhibition or not?
Read more about the article More is known about Epysqli these days

More is known about Epysqli these days

  • Post author:Len Woodward
  • Post published:September 4, 2025
  • Post category:Featured
  • Post comments:0 Comments

The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…

Continue ReadingMore is known about Epysqli these days
Read more about the article Health economics and stopping eculizumab treatment safely

Health economics and stopping eculizumab treatment safely

  • Post author:Len Woodward
  • Post published:August 30, 2025
  • Post category:News
  • Post comments:0 Comments

A second article in a series of four planned has just been published. It is about the health economics of treatment…

Continue ReadingHealth economics and stopping eculizumab treatment safely
Read more about the article Welcoming another country to the “Global aHUS Town”

Welcoming another country to the “Global aHUS Town”

  • Post author:Len Woodward
  • Post published:August 21, 2025
  • Post category:News
  • Post comments:0 Comments

In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…

Continue ReadingWelcoming another country to the “Global aHUS Town”
Read more about the article Fairy Tale on the island of Camp-le-mont

Fairy Tale on the island of Camp-le-mont

  • Post author:Len Woodward
  • Post published:August 14, 2025
  • Post category:Featured
  • Post comments:0 Comments

Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…

Continue ReadingFairy Tale on the island of Camp-le-mont
Read more about the article Stopping aHUS Treatment Safely

Stopping aHUS Treatment Safely

  • Post author:Len Woodward
  • Post published:August 14, 2025
  • Post category:News
  • Post comments:0 Comments

It is over a decade ago now but I still recall vividly when, at the first meeting of what would become…

Continue ReadingStopping aHUS Treatment Safely
Read more about the article India had its first aHUS patient conference- what next

India had its first aHUS patient conference- what next

  • Post author:Len Woodward
  • Post published:July 3, 2025
  • Post category:Featured/News
  • Post comments:0 Comments

India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…

Continue ReadingIndia had its first aHUS patient conference- what next
Read more about the article Is this the beginning of the end of an aHUS journey in India?

Is this the beginning of the end of an aHUS journey in India?

  • Post author:Len Woodward
  • Post published:June 28, 2025
  • Post category:News
  • Post comments:0 Comments

Frequently these days people talk about their "journey". I have known of the journey of an aHUS patient in India for…

Continue ReadingIs this the beginning of the end of an aHUS journey in India?
Read more about the article Advocacy for aHUS and “aHUSs”

Advocacy for aHUS and “aHUSs”

  • Post author:Len Woodward
  • Post published:June 19, 2025
  • Post category:Featured
  • Post comments:0 Comments

When it comes to advocacy why say there is aHUS and there is also aHUSs? The rare disease aHUS is described…

Continue ReadingAdvocacy for aHUS and “aHUSs”
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