Decision making in aHUS Health Recovery
The annual aHUS Awareness Day video ( see HERE) had a theme of best decision making in the recovery from an…
The annual aHUS Awareness Day video ( see HERE) had a theme of best decision making in the recovery from an…
What is it like from an aHUS patients' perspective to decide to withdraw from complement inhibitor treatment? Much is published about…
Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
A second article in a series of four planned has just been published. It is about the health economics of treatment…
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…