Parental Germline Mosaicism: What It Means for aHUS Families
When a child is diagnosed with atypical haemolytic uraemic syndrome (aHUS), also known as complement-mediated thrombotic microangiopathy (cTMA), genetic testing often…
Family Planning- aHUS Agenda Topic 14
Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…
The early days of aHUS Research (Before aHUS Endeavours Fade)
Global Action is privileged to present a second article in the series BEFORE aHUS ENDEAVOURS FADE. Celebrating the work of people…
Thrombotic Microangiopathy & Precision Medicine
Article No. 342 6 May 2020 Thrombotic Microangiopathy & Precision Medicine What’s to be learned from the Pandemic? At…
Third Stop Bergamo Italy and another aHUS Expert Centre
Bergamo IT - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 3rd Stop: Mario Negri Institute, the Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò"
aHUS and TMA Study Centers
aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance Atypical HUS is difficult to diagnosis and treat,…
Someone has to be the first
Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…
Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
International Nephrology Conference in BUCHAREST, Romania 17 & 18 Nov 2017 In the 1st conference of this type…