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rare disease

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Read more about the article A New Year and new to aHUS

A New Year and new to aHUS

  • Post author:Len Woodward
  • Post published:January 2, 2024
  • Post category:Featured
  • Post comments:0 Comments

It’s 2024. A New Year.This year around the world about 4000 people will newly onset with the primary form of aHUS.…

Continue ReadingA New Year and new to aHUS
Read more about the article ChatGPT and aHUS Christmas chat ( and an aHUS carol)

ChatGPT and aHUS Christmas chat ( and an aHUS carol)

  • Post author:Len Woodward
  • Post published:December 17, 2023
  • Post category:Featured
  • Post comments:0 Comments

Last year at this time Global Action published an article recording a conversation we had with ChatGPT ( an AI thing)…

Continue ReadingChatGPT and aHUS Christmas chat ( and an aHUS carol)
Read more about the article Is an aHUS patient research agenda worthwhile?

Is an aHUS patient research agenda worthwhile?

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…

Continue ReadingIs an aHUS patient research agenda worthwhile?
Read more about the article Immunocompromisation- is it aHUS?

Immunocompromisation- is it aHUS?

  • Post author:Len Woodward
  • Post published:October 20, 2023
  • Post category:News
  • Post comments:0 Comments

Immunocompromisation is a hall mark of aHUS. For those who are predisposed to it and for those who have had it…

Continue ReadingImmunocompromisation- is it aHUS?
Read more about the article Cause or effect  aHUS/IBD

Cause or effect aHUS/IBD

  • Post author:Len Woodward
  • Post published:July 30, 2023
  • Post category:Featured
  • Post comments:0 Comments

In crime programmes when someone lands on the ground from a great height the question asked is “were they pushed or…

Continue ReadingCause or effect aHUS/IBD
Read more about the article Later onset aHUS

Later onset aHUS

  • Post author:Len Woodward
  • Post published:July 9, 2023
  • Post category:Featured
  • Post comments:0 Comments

We all want aHUS patients to survive to old age, but what about those whose aHUS onset is later in life.…

Continue ReadingLater onset aHUS
Read more about the article Why aHUS for them not me?

Why aHUS for them not me?

  • Post author:Len Woodward
  • Post published:June 6, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

Hey GA tell me why aHUS for them and not me? Oh hi again. Who is them?Some of my family they…

Continue ReadingWhy aHUS for them not me?
Read more about the article RDD23 VIDEO – RESULTS REPORT

RDD23 VIDEO – RESULTS REPORT

  • Post author:Len Woodward
  • Post published:March 18, 2023
  • Post category:Featured
  • Post comments:0 Comments

WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…

Continue ReadingRDD23 VIDEO – RESULTS REPORT
Read more about the article Is incidence of aHUS  really “2 per million”?

Is incidence of aHUS really “2 per million”?

  • Post author:Len Woodward
  • Post published:March 10, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…

Continue ReadingIs incidence of aHUS really “2 per million”?
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