Withdrawing from treatment- patients’ perception
What is it like from an aHUS patients' perspective to decide to withdraw from complement inhibitor treatment? Much is published about…
What is it like from an aHUS patients' perspective to decide to withdraw from complement inhibitor treatment? Much is published about…
A second article in a series of four planned has just been published. It is about the health economics of treatment…
The aHUS Alliance Global Action team remains strong advocates for those affected by the rare disease atypical HUS, and proudly partners…
Global Action has more than any other organisation promoted the research registries that exist for our rare disease. Many rare diseases…
Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an…
Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…
The Global Action series “Trial Watch” has in the past covered several trials of treatments for aHUS patients and even some…
As sometimes happens in life, things can arise as a group that makes people take a bit more notice than if…
The long anticipated KDIGO Guidelines from the Controversies Conference held in Florence in September 2022 are now published. The report can…