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Read more about the article KDIGO – aHUS controversies and consensus

KDIGO – aHUS controversies and consensus

  • Post author:Len Woodward
  • Post published:July 26, 2022
  • Post category:News
  • Post comments:0 Comments

Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…

Continue ReadingKDIGO – aHUS controversies and consensus
Read more about the article Trial watch  16 -Factor D complement inhibitor.

Trial watch 16 -Factor D complement inhibitor.

  • Post author:Len Woodward
  • Post published:July 13, 2022
  • Post category:News
  • Post comments:0 Comments

One of the ways to find out which drugs have a potential for aHUS treatment is to look at trials for…

Continue ReadingTrial watch 16 -Factor D complement inhibitor.
Read more about the article A Community Advisory Board for aHUS

A Community Advisory Board for aHUS

  • Post author:Len Woodward
  • Post published:June 12, 2022
  • Post category:News
  • Post comments:0 Comments

Today it can be announced that a Global aHUS Community Advisory Board (CAB) has been formed. What is a Community Advisory…

Continue ReadingA Community Advisory Board for aHUS
Read more about the article An aHUS diagnosis, lucky or what?

An aHUS diagnosis, lucky or what?

  • Post author:Len Woodward
  • Post published:June 10, 2022
  • Post category:News
  • Post comments:0 Comments

It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began…

Continue ReadingAn aHUS diagnosis, lucky or what?
Read more about the article 3 weeks to aHUS Conference
Panoramic view of vittà alta. Bergamo - Italy

3 weeks to aHUS Conference

  • Post author:Len Woodward
  • Post published:June 1, 2022
  • Post category:News
  • Post comments:0 Comments

The most important conference being held this year to feature aHUS, is the long awaited ISN Complement Mediated Renal Disease meeting…

Continue Reading3 weeks to aHUS Conference
Read more about the article That was the aHUS Rare Disease Day Video that was

That was the aHUS Rare Disease Day Video that was

  • Post author:Len Woodward
  • Post published:May 20, 2022
  • Post category:Featured
  • Post comments:0 Comments

65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views…

Continue ReadingThat was the aHUS Rare Disease Day Video that was
Read more about the article Integrating a greater aHUS patient voice

Integrating a greater aHUS patient voice

  • Post author:Len Woodward
  • Post published:May 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

A final question in the RDD2022 video series on how to integrate a patient voice of experience into aHUS Pharma and…

Continue ReadingIntegrating a greater aHUS patient voice
Read more about the article Difference in aHUSs

Difference in aHUSs

  • Post author:Len Woodward
  • Post published:May 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

This question about difference in disease triggers and treatments from Jeff did not feature in the RDD2022 video but was given…

Continue ReadingDifference in aHUSs
Read more about the article Future effects of aHUS and its treatment

Future effects of aHUS and its treatment

  • Post author:Len Woodward
  • Post published:May 11, 2022
  • Post category:Featured
  • Post comments:0 Comments

A number of questions in the RDD2022 video are about what will happen to patients in the future due to the…

Continue ReadingFuture effects of aHUS and its treatment
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