Atypical HUS Research: Feb 2025 Roundup
Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an…
Modifying the name for aHUS- a to do list?
The medical community may not agree on everything but all agree on modifying the disease name aHUS.. A report published in…
FDA has a record about aHUS
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
Is a patient organisation still needed for aHUS?
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
It’s ChristmaHUS
Try the ChristmaHUS Quiz and when you finish join in with the aHUS Christmas Carol. Here’s a 20-question multiple-choice quiz on…
aHUS etc dip into ASH 2024
Some of the latest aHUS, CM-TMA and TMA research being displayed at the American Society of Haematologists , ASH, conference 2024…
700 facts about aHUS?
This is the 700 th blog article about aHUS on this website. When thinking about how to mark this milestone a…
Numbers of aHUS patients
The aHUS patient community asked in its research agenda what are the numbers of aHUS patients. Global Action has written about…
Mental health aHUS Day video- insights
The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it…