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Read more about the article Social media and aHUS- Before aHUS endeavours fade

Social media and aHUS- Before aHUS endeavours fade

  • Post author:Len Woodward
  • Post published:September 6, 2024
  • Post category:Featured
  • Post comments:0 Comments

aHUS in the social media is now much more commonplace. In this latest article in the series “Before aHUS Endeavours Fade”…

Continue ReadingSocial media and aHUS- Before aHUS endeavours fade
Read more about the article Atypical HUS and PNH: better together?

Atypical HUS and PNH: better together?

  • Post author:Len Woodward
  • Post published:September 4, 2024
  • Post category:News
  • Post comments:0 Comments

The diseases PNH and aHUS, although different, share features in common. Both are very rare, both are the result of uncontrolled…

Continue ReadingAtypical HUS and PNH: better together?
Read more about the article aHUS awareness day and aHUS alliance Global Action

aHUS awareness day and aHUS alliance Global Action

  • Post author:Len Woodward
  • Post published:August 21, 2024
  • Post category:Featured
  • Post comments:0 Comments

Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…

Continue ReadingaHUS awareness day and aHUS alliance Global Action
Read more about the article AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Without any further comment here is the model mentioned in the previous article ( which if you have not already seen…

Continue ReadingAN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL
Read more about the article TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a…

Continue ReadingTO STOP OR NOT TO STOP – THAT IS THE QUESTION?
Read more about the article The KDIGO “aHUS” Guidelines have arrived

The KDIGO “aHUS” Guidelines have arrived

  • Post author:Len Woodward
  • Post published:June 13, 2024
  • Post category:News
  • Post comments:0 Comments

The long anticipated KDIGO Guidelines from the Controversies Conference held in Florence in September 2022 are now published. The report can…

Continue ReadingThe KDIGO “aHUS” Guidelines have arrived
Read more about the article Family Planning- aHUS Agenda Topic 14

Family Planning- aHUS Agenda Topic 14

  • Post author:Len Woodward
  • Post published:January 29, 2024
  • Post category:Featured
  • Post comments:0 Comments

Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…

Continue ReadingFamily Planning- aHUS Agenda Topic 14
Read more about the article AHUS patients met with FDA and this is what they said

AHUS patients met with FDA and this is what they said

  • Post author:Len Woodward
  • Post published:January 10, 2024
  • Post category:News
  • Post comments:0 Comments

In September last year a group of aHUS patients and parent/carers met with FDA and told them about aHUS. A summary…

Continue ReadingAHUS patients met with FDA and this is what they said
Read more about the article Cure – aHUS Agenda Topic 9

Cure – aHUS Agenda Topic 9

  • Post author:Len Woodward
  • Post published:January 8, 2024
  • Post category:Featured
  • Post comments:0 Comments

A cure for aHUS would mean an individual would be at no risk of the disease again. Patients ask Will there…

Continue ReadingCure – aHUS Agenda Topic 9
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