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Read more about the article Decision Process: Discontinuing aHUS Treatment 

Decision Process: Discontinuing aHUS Treatment 

  • Post author:Linda Burke
  • Post published:June 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No 441 18 June 2021   What topics and questions are likely to frame conversations about treating patients who have…

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Read more about the article aHUS Relapse: Expect the Unexpected

aHUS Relapse: Expect the Unexpected

  • Post author:ahusalliance
  • Post published:February 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.

Continue ReadingaHUS Relapse: Expect the Unexpected
Read more about the article Atypical HUS 1.0

Atypical HUS 1.0

  • Post author:ahusalliance
  • Post published:July 10, 2018
  • Post category:Uncategorized
  • Post comments:0 Comments

What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.

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Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

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Read more about the article Thinking More About aHUS Today.

Thinking More About aHUS Today.

  • Post author:ahusalliance
  • Post published:September 24, 2017
  • Post category:Featured
  • Post comments:0 Comments

So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…

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Read more about the article Videos about aHUS which make you think differently

Videos about aHUS which make you think differently

  • Post author:ahusalliance
  • Post published:September 16, 2017
  • Post category:Featured
  • Post comments:0 Comments

Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…

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Read more about the article aHUS Patient Care – the Need for Multidisciplinary Collaboration

aHUS Patient Care – the Need for Multidisciplinary Collaboration

  • Post author:ahusalliance
  • Post published:May 10, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Patients make appointments to see their primary care physician when a health issue arises, but often more complex cases merit…

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