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Read more about the article World Kidney Day  2024 – a webinar

World Kidney Day 2024 – a webinar

  • Post author:Len Woodward
  • Post published:March 14, 2024
  • Post category:News
  • Post comments:0 Comments

Today is World Kidney Day. An annual awareness day to bring kidney disease matters to the world’s attention. aHUS is a…

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Read more about the article Variants of uncertain significance (VUS) for aHUS

Variants of uncertain significance (VUS) for aHUS

  • Post author:Len Woodward
  • Post published:March 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…

Continue ReadingVariants of uncertain significance (VUS) for aHUS
Read more about the article Poems for aHUS,

Poems for aHUS,

  • Post author:Len Woodward
  • Post published:March 5, 2024
  • Post category:Uncategorized
  • Post comments:0 Comments

While sorting out some papers recently I came across a poem an aHUS patient sent me about living with dialysis. This…

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Read more about the article What  the RDD24 aHUS video tells us.

What the RDD24 aHUS video tells us.

  • Post author:Len Woodward
  • Post published:March 4, 2024
  • Post category:News
  • Post comments:0 Comments

The Steven Spielberg of aHUS videos (Jeff) has produce another aHUS video for RDD24. Sixty six aHUS patients /carers starred in…

Continue ReadingWhat the RDD24 aHUS video tells us.
Read more about the article What’s New in aHUS Research: Feb 2024 Edition

What’s New in aHUS Research: Feb 2024 Edition

  • Post author:Linda Burke
  • Post published:February 18, 2024
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS - research updates for Feb 2024

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Read more about the article Medication Guide Eculizumab

Medication Guide Eculizumab

  • Post author:Len Woodward
  • Post published:February 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial…

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Read more about the article Review of the research that matters to aHUS patients (Part 2)

Review of the research that matters to aHUS patients (Part 2)

  • Post author:Len Woodward
  • Post published:February 12, 2024
  • Post category:Featured
  • Post comments:0 Comments

When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…

Continue ReadingReview of the research that matters to aHUS patients (Part 2)
Read more about the article Review of the aHUS patient research agenda (Part 1)

Review of the aHUS patient research agenda (Part 1)

  • Post author:Len Woodward
  • Post published:February 7, 2024
  • Post category:Featured
  • Post comments:0 Comments

During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…

Continue ReadingReview of the aHUS patient research agenda (Part 1)
Read more about the article Dr Leonard Bell – Before aHUS Endeavours Fade

Dr Leonard Bell – Before aHUS Endeavours Fade

  • Post author:Len Woodward
  • Post published:February 5, 2024
  • Post category:News
  • Post comments:0 Comments

Those new to the disease aHUS may not know the significant contribution that Dr Leonard Bell has made to their treatment…

Continue ReadingDr Leonard Bell – Before aHUS Endeavours Fade
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