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Read more about the article Topics in aHUS Global Advocacy: Oct 2023

Topics in aHUS Global Advocacy: Oct 2023

  • Post author:Linda Burke
  • Post published:October 10, 2023
  • Post category:Uncategorized
  • Post comments:0 Comments

Keeping current with advancements in atypical HUS knowledge is important for patient families as well as clinicians, but that’s no small…

Continue ReadingTopics in aHUS Global Advocacy: Oct 2023
Read more about the article Complement inhibitor users it’s World Meningitis Day

Complement inhibitor users it’s World Meningitis Day

  • Post author:Len Woodward
  • Post published:October 5, 2023
  • Post category:News
  • Post comments:0 Comments

It is important that those using complement inhibitors remain alert to meningococcal infection a life threatening side effect of their use.…

Continue ReadingComplement inhibitor users it’s World Meningitis Day
Read more about the article What are aHUS people capable of?

What are aHUS people capable of?

  • Post author:Len Woodward
  • Post published:September 26, 2023
  • Post category:News
  • Post comments:0 Comments

About 4000 people around the world have had aHUS since the last aHUS awareness day. Many did not survive, they were…

Continue ReadingWhat are aHUS people capable of?
Read more about the article Just saying it’s aHUS Awareness Day 2023

Just saying it’s aHUS Awareness Day 2023

  • Post author:Len Woodward
  • Post published:September 24, 2023
  • Post category:News
  • Post comments:0 Comments

Yes today 24th September 2023 is another aHUS awareness day, the 9th to date. Ever wonder who is behind this international…

Continue ReadingJust saying it’s aHUS Awareness Day 2023
Read more about the article Some aHUS awareness for FDA today

Some aHUS awareness for FDA today

  • Post author:Len Woodward
  • Post published:September 21, 2023
  • Post category:News
  • Post comments:0 Comments

Something different has been tried this year to raise awareness of aHUS. It involved the Food & Drugs Administration , the…

Continue ReadingSome aHUS awareness for FDA today
Read more about the article Atypical HUS Research: What’s New for Sept 2023?

Atypical HUS Research: What’s New for Sept 2023?

  • Post author:Linda Burke
  • Post published:September 18, 2023
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS research highlights for Sept 2023 - additions to our aHUS-specific research library

Continue ReadingAtypical HUS Research: What’s New for Sept 2023?
Read more about the article Atypical HUS Facts:  2023 – Sept –  2024

Atypical HUS Facts:  2023 – Sept –  2024

  • Post author:Linda Burke
  • Post published:September 14, 2023
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Fact Sheet: 2023 SEPT 2024 An informational resource from the global advocates at aHUS Alliance Global Action

Continue ReadingAtypical HUS Facts:  2023 – Sept –  2024
Read more about the article The early days of aHUS Research (Before aHUS Endeavours Fade)

The early days of aHUS Research (Before aHUS Endeavours Fade)

  • Post author:Len Woodward
  • Post published:September 11, 2023
  • Post category:Featured
  • Post comments:0 Comments

Global Action is privileged to present a second article in the series BEFORE aHUS ENDEAVOURS FADE. Celebrating the work of people…

Continue ReadingThe early days of aHUS Research (Before aHUS Endeavours Fade)
Read more about the article Numbers about aHUS

Numbers about aHUS

  • Post author:Len Woodward
  • Post published:September 5, 2023
  • Post category:Featured
  • Post comments:0 Comments

The first thing about aHUS numbers is that there is no exact record of global aHUS patients anywhere . But research…

Continue ReadingNumbers about aHUS
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