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Read more about the article AIRG Suisse: Their aHUS Survey

AIRG Suisse: Their aHUS Survey

  • Post author:Linda Burke
  • Post published:October 27, 2024
  • Post category:Featured
  • Post comments:0 Comments

Our aHUS Alliance Global Action team takes to heart our mission to “Inform. Connect. Collaborate” on ideas and initiatives across all…

Continue ReadingAIRG Suisse: Their aHUS Survey
Read more about the article Discontinuing complement inhibitor treatment

Discontinuing complement inhibitor treatment

  • Post author:Len Woodward
  • Post published:October 22, 2024
  • Post category:Featured
  • Post comments:0 Comments

It is now just over 3 months since a discontinuing treatment decision making model was proposed to help aHUS patients make…

Continue ReadingDiscontinuing complement inhibitor treatment
Read more about the article Why the kidney – blame the complosome?

Why the kidney – blame the complosome?

  • Post author:Len Woodward
  • Post published:October 12, 2024
  • Post category:Featured
  • Post comments:0 Comments

Intracellular complement, or “complosome,” refers to the complement system’s activity within cells, a discovery that has significantly expanded the understanding of…

Continue ReadingWhy the kidney – blame the complosome?
Read more about the article aHUS is likely at any time of year

aHUS is likely at any time of year

  • Post author:Len Woodward
  • Post published:October 1, 2024
  • Post category:Uncategorized
  • Post comments:0 Comments

More data about the time of year for aHUS was collected in the recent aHUS Global Poll to add to that…

Continue ReadingaHUS is likely at any time of year
Read more about the article Out with old in with the new- not quite just yet

Out with old in with the new- not quite just yet

  • Post author:Len Woodward
  • Post published:September 23, 2024
  • Post category:Featured
  • Post comments:0 Comments

On the 10th anniversary of international aHUS awareness day it is timely to raise awareness that the old term aHUS is…

Continue ReadingOut with old in with the new- not quite just yet
Read more about the article What’s New in aHUS Research: SEPT 2024 Edition

What’s New in aHUS Research: SEPT 2024 Edition

  • Post author:Linda Burke
  • Post published:September 23, 2024
  • Post category:Uncategorized
  • Post comments:0 Comments

Every year since the first aHUS Awareness Day on 24 Sept 2015 we’ve attempted to shine a spotlight on atypical HUS…

Continue ReadingWhat’s New in aHUS Research: SEPT 2024 Edition
Read more about the article The first ever aHUS research study patient cohort

The first ever aHUS research study patient cohort

  • Post author:Len Woodward
  • Post published:September 20, 2024
  • Post category:Featured
  • Post comments:0 Comments

The Global Action website has been featuring the pioneers and first events of aHUS history in its series Before aHUS Endeavours…

Continue ReadingThe first ever aHUS research study patient cohort
Read more about the article Atypical HUS Facts: 2024 – Sept – 2025

Atypical HUS Facts: 2024 – Sept – 2025

  • Post author:Linda Burke
  • Post published:September 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

2024 – SEPT – 2025  Atypical HUS: Fact Sheets & Research Atypical Hemolytic Uremic Syndrome – a Rare Disease   Information…

Continue ReadingAtypical HUS Facts: 2024 – Sept – 2025
Read more about the article The 2024 Global aHUS Poll

The 2024 Global aHUS Poll

  • Post author:Len Woodward
  • Post published:September 10, 2024
  • Post category:News
  • Post comments:0 Comments

The 2024 Global aHUS Poll was closed to further responses on 18th July. It had been open for 6 weeks and…

Continue ReadingThe 2024 Global aHUS Poll
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