aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
What’s New in aHUS Research: August 2026 Edition
Once more the aHUS Alliance Global Action team presents a brief overview of new publications just added to our ‘Atypical HUS…
DGKE is NOT a cTMA , DGKE is its own COMMUNITY
As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
aHUS Global Advocate Newsletter: Aug 2026 Edition
We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 14, August 2026)…
aHUS may not always happen without 3 hits
Although it is thought it might, aHUS does not always happen. It needs 3 hits. It is known that aHUS is…
News on Mental Health & Rare Diseases
Our aHUS Alliance Global Action team recently received an email from the people at RareMinds, a UK-based organization whose mission in…
Grumbling aHUS
Hi my aHUS just grumbles. Hi just grumbles you say. Yes it like smoulders not going out, then bubbles up ,…
Mindful or minding RBCs after aHUS
Those with a chronic disease, whether in remission or not, remain mindful or minding what clinical tests are telling them about…
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