Topics in aHUS Research – Sept 2022
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…
Atypical HUS in Portugal
We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and…
aHUS in New Zealand
We're so pleased to highlight atypical HUS in New Zealand, with this article written by aHUS family caregiver Anna Benson. No…
Does this genetic variant cause aHUS- Yes or No?
Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…
aHUS Patient Meeting Aug 2022 – USTMA
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…
MORL: An Impact on aHUS Genetics
What’s involved in aHUS genetic testing, and are all labs alike? The answer to the first is quite complex, and no…
Atypical HUS – an Interview with Dr Brad Lewis of Machaon Diagnostics
We’re pleased to feature this interview with Dr Brad Lewis, Medical Director of Machaon Diagnostics. A hematologist with background in biochemistry…
That was the aHUS Rare Disease Day Video that was
65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views…
Integrating a greater aHUS patient voice
A final question in the RDD2022 video series on how to integrate a patient voice of experience into aHUS Pharma and…
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