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atypical HUS

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Read more about the article Why aHUS for them and not me

Why aHUS for them and not me

  • Post author:Len Woodward
  • Post published:October 8, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Earlier this year in the series of articles following the Rare Disease Day video one featured a question by Elisabeth from…

Continue ReadingWhy aHUS for them and not me
Read more about the article Improving outcomes for “aHUS” patients, I was there.

Improving outcomes for “aHUS” patients, I was there.

  • Post author:Len Woodward
  • Post published:October 3, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting…

Continue ReadingImproving outcomes for “aHUS” patients, I was there.
Read more about the article Funds raised by aHUS people contribute to diagnosis research

Funds raised by aHUS people contribute to diagnosis research

  • Post author:Len Woodward
  • Post published:September 24, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Fund raising, which began when aHUSUK still existed, has been put to use to help fund research which may improve the…

Continue ReadingFunds raised by aHUS people contribute to diagnosis research
Read more about the article aHUS Patients’ Qualities -Together

aHUS Patients’ Qualities -Together

  • Post author:Len Woodward
  • Post published:September 24, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS patients are people. People are different. But only aHUS people have had aHUS. It is something they share together. As…

Continue ReadingaHUS Patients’ Qualities -Together
Read more about the article The ethics of aHUS treatment trials

The ethics of aHUS treatment trials

  • Post author:Len Woodward
  • Post published:September 15, 2022
  • Post category:Featured
  • Post comments:0 Comments

When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…

Continue ReadingThe ethics of aHUS treatment trials
Read more about the article *Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

  • Post author:Len Woodward
  • Post published:September 1, 2022
  • Post category:News
  • Post comments:0 Comments

Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…

Continue Reading*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Read more about the article Does this genetic variant cause aHUS- Yes or No?

Does this genetic variant cause aHUS- Yes or No?

  • Post author:Len Woodward
  • Post published:August 22, 2022
  • Post category:Featured
  • Post comments:0 Comments

Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…

Continue ReadingDoes this genetic variant cause aHUS- Yes or No?
Read more about the article TMAs and aHUS illustrated

TMAs and aHUS illustrated

  • Post author:Len Woodward
  • Post published:July 31, 2022
  • Post category:News
  • Post comments:0 Comments

Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…

Continue ReadingTMAs and aHUS illustrated
Read more about the article KDIGO – aHUS controversies and consensus

KDIGO – aHUS controversies and consensus

  • Post author:Len Woodward
  • Post published:July 26, 2022
  • Post category:News
  • Post comments:0 Comments

Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…

Continue ReadingKDIGO – aHUS controversies and consensus
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