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eculizumab

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Read more about the article An open letter to Alexion for 2018

An open letter to Alexion for 2018

  • Post author:ahusalliance
  • Post published:January 1, 2018
  • Post category:Featured
  • Post comments:0 Comments

1 January 2018 Dear Alexion As you know aHUS is a life threatening and debilitating condition. You have the only treatment…

Continue ReadingAn open letter to Alexion for 2018
Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
Read more about the article The aHUS Registry Explained (Part 1)

The aHUS Registry Explained (Part 1)

  • Post author:ahusalliance
  • Post published:November 27, 2017
  • Post category:Featured
  • Post comments:0 Comments

From its beginning the aHUS alliance’s website has featured articles about the aHUS Registry and the work it does (click here…

Continue ReadingThe aHUS Registry Explained (Part 1)
Read more about the article Complement over  and under Complementing

Complement over and under Complementing

  • Post author:ahusalliance
  • Post published:June 16, 2017
  • Post category:Featured
  • Post comments:0 Comments

One of the simplest and clearest overview images to illustrate the Complement system is provided by an organisation called  Euro Diagnostica…

Continue ReadingComplement over and under Complementing
Read more about the article Why is Complement “Complement” ?

Why is Complement “Complement” ?

  • Post author:ahusalliance
  • Post published:June 7, 2017
  • Post category:Featured
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It is nearly 102 years  since the death of Paul Ehrlich."So what? "  you might say. But it was Ehrlich who…

Continue ReadingWhy is Complement “Complement” ?
Read more about the article Genetic tests – to know or not?

Genetic tests – to know or not?

  • Post author:ahusalliance
  • Post published:April 20, 2017
  • Post category:Featured
  • Post comments:0 Comments

Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…

Continue ReadingGenetic tests – to know or not?
Read more about the article Vision Issues & aHUS

Vision Issues & aHUS

  • Post author:ahusalliance
  • Post published:March 8, 2017
  • Post category:Featured
  • Post comments:0 Comments

  It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…

Continue ReadingVision Issues & aHUS
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