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eculizumab

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Read more about the article Withdrawal – need for a consensus

Withdrawal – need for a consensus

  • Post author:ahusalliance
  • Post published:September 8, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 457 Yet another article about the outcome of withdrawal of eculizumab treatment has appeared. It is not about a…

Continue ReadingWithdrawal – need for a consensus
Read more about the article What became of the aHUS 130?

What became of the aHUS 130?

  • Post author:ahusalliance
  • Post published:July 14, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 446 14 July 2021 Eculizumab effectiveness and safety in the treatment of aHUS was established in five clinical trials…

Continue ReadingWhat became of the aHUS 130?
Read more about the article COVID 19 triggers aHUS

COVID 19 triggers aHUS

  • Post author:ahusalliance
  • Post published:July 12, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 444 12 July 2021 Not unexpectedly, as aHUS Global Action had postulated it in March last year, a COVID…

Continue ReadingCOVID 19 triggers aHUS
Read more about the article Evaluating ravulizumab for aHUS treatment

Evaluating ravulizumab for aHUS treatment

  • Post author:ahusalliance
  • Post published:June 23, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 442 23 June 2021 Today NICE ( The National Institute for Health and Care Excellence) concluded its evaluation of…

Continue ReadingEvaluating ravulizumab for aHUS treatment
Read more about the article Decision Process: Discontinuing aHUS Treatment 

Decision Process: Discontinuing aHUS Treatment 

  • Post author:Linda Burke
  • Post published:June 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No 441 18 June 2021      What topics and questions are likely to frame conversations about treating patients who…

Continue ReadingDecision Process: Discontinuing aHUS Treatment 
Read more about the article aHUS Trial Watch 12 (crovalimab update)

aHUS Trial Watch 12 (crovalimab update)

  • Post author:ahusalliance
  • Post published:May 7, 2021
  • Post category:Featured
  • Post comments:1 Comment

Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…

Continue ReadingaHUS Trial Watch 12 (crovalimab update)
Read more about the article aHUS uncertainty is a certainty

aHUS uncertainty is a certainty

  • Post author:ahusalliance
  • Post published:March 16, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…

Continue ReadingaHUS uncertainty is a certainty
Read more about the article aHUS Relapse: Expect the Unexpected

aHUS Relapse: Expect the Unexpected

  • Post author:ahusalliance
  • Post published:February 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.

Continue ReadingaHUS Relapse: Expect the Unexpected
Read more about the article BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly

BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly

  • Post author:ahusalliance
  • Post published:January 23, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No 413 23 January 2021 Very few people have heard of BB5.1 nor even  c.3643C>G; p. Arg1215Gly. Yet both are of…

Continue ReadingBB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly
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