An open letter to Alexion for 2018
1 January 2018 Dear Alexion As you know aHUS is a life threatening and debilitating condition. You have the only treatment…
1 January 2018 Dear Alexion As you know aHUS is a life threatening and debilitating condition. You have the only treatment…
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…
From its beginning the aHUS alliance’s website has featured articles about the aHUS Registry and the work it does (click here…
One of the simplest and clearest overview images to illustrate the Complement system is provided by an organisation called Euro Diagnostica…
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who…
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…