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rare disease

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Read more about the article aHUS Patient Numbers :RDD 25 Video Insights

aHUS Patient Numbers :RDD 25 Video Insights

  • Post author:Len Woodward
  • Post published:March 6, 2025
  • Post category:Featured
  • Post comments:0 Comments

Remember in the COVID years of 2020 and 2021 the media was plastered with COVID patient numbers. They were ubiquitous and…

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Read more about the article aHUS on rare disease day 2025

aHUS on rare disease day 2025

  • Post author:Len Woodward
  • Post published:February 28, 2025
  • Post category:Events
  • Post comments:0 Comments

This is what Grok AI says about aHUS alliance efforts have been to promote Rare Disease Day 2025 awreness, 1. **Video…

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Read more about the article FDA has a record about aHUS

FDA has a record about aHUS

  • Post author:Len Woodward
  • Post published:January 10, 2025
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…

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Read more about the article RDD25:  MORE THAN YOU CAN IMAGINE!

RDD25:  MORE THAN YOU CAN IMAGINE!

  • Post author:Len Woodward
  • Post published:January 4, 2025
  • Post category:Uncategorized
  • Post comments:0 Comments

Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…

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Read more about the article Is a patient organisation still needed for aHUS?

Is a patient organisation still needed for aHUS?

  • Post author:Len Woodward
  • Post published:January 1, 2025
  • Post category:Uncategorized
  • Post comments:0 Comments

As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…

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Read more about the article 700 facts about aHUS?

700 facts about aHUS?

  • Post author:Len Woodward
  • Post published:November 26, 2024
  • Post category:Featured
  • Post comments:0 Comments

This is the 700 th blog article about aHUS on this website. When thinking about how to mark this milestone a…

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Read more about the article Numbers of aHUS patients

Numbers of aHUS patients

  • Post author:Len Woodward
  • Post published:November 25, 2024
  • Post category:Featured
  • Post comments:0 Comments

The aHUS patient community asked in its research agenda what are the numbers of aHUS patients. Global Action has written about…

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Read more about the article Mental health aHUS Day video- insights

Mental health aHUS Day video- insights

  • Post author:Len Woodward
  • Post published:November 24, 2024
  • Post category:Featured
  • Post comments:0 Comments

The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it…

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Read more about the article Why the kidney – blame the complosome?

Why the kidney – blame the complosome?

  • Post author:Len Woodward
  • Post published:October 12, 2024
  • Post category:Featured
  • Post comments:0 Comments

Intracellular complement, or “complosome,” refers to the complement system’s activity within cells, a discovery that has significantly expanded the understanding of…

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