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Read more about the article Call to action USA aHUS Patients

Call to action USA aHUS Patients

  • Post author:Len Woodward
  • Post published:October 5, 2021
  • Post category:Featured
  • Post comments:0 Comments

In Article 462 notice was given of a study to help USA rare disease patients in general. and aHUS patients in…

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Read more about the article Pregnancy and aHUS

Pregnancy and aHUS

  • Post author:Len Woodward
  • Post published:October 1, 2021
  • Post category:News
  • Post comments:0 Comments

The topic of pregnancy and aHUS is included in the Global aHUS Patients’ Research Agenda. It has featured in articles on…

Continue ReadingPregnancy and aHUS
Read more about the article aHUS Patient Registries Iran & ERKNet

aHUS Patient Registries Iran & ERKNet

  • Post author:Len Woodward
  • Post published:September 29, 2021
  • Post category:News
  • Post comments:0 Comments

There have been several articles about aHUS Patient Registries on this website over the years. Patient Registries are an important part…

Continue ReadingaHUS Patient Registries Iran & ERKNet
Read more about the article Evaluating ravulizumab for aHUS treatment

Evaluating ravulizumab for aHUS treatment

  • Post author:ahusalliance
  • Post published:June 23, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 442 23 June 2021 Today NICE ( The National Institute for Health and Care Excellence) concluded its evaluation of…

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Read more about the article aHUS Trial Watch 12 (crovalimab update)

aHUS Trial Watch 12 (crovalimab update)

  • Post author:ahusalliance
  • Post published:May 7, 2021
  • Post category:Featured
  • Post comments:1 Comment

Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…

Continue ReadingaHUS Trial Watch 12 (crovalimab update)
Read more about the article aHUS and COVID 19 Vaccine Update Update

aHUS and COVID 19 Vaccine Update Update

  • Post author:ahusalliance
  • Post published:March 19, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a…

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Read more about the article aHUS uncertainty is a certainty

aHUS uncertainty is a certainty

  • Post author:ahusalliance
  • Post published:March 16, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…

Continue ReadingaHUS uncertainty is a certainty
Read more about the article Being An aHUS Trialist

Being An aHUS Trialist

  • Post author:ahusalliance
  • Post published:February 16, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No.  419 16 February 2021 It is spring time in 2017. You feel very unwell, very poorly. It is thought…

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Read more about the article Follow up on aHUS/COVID19 JAbs Follow Up

Follow up on aHUS/COVID19 JAbs Follow Up

  • Post author:ahusalliance
  • Post published:January 28, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 414 28 January 2021 A further update on the issue of aHUS and COVID 19 vaccinations from the author’s…

Continue ReadingFollow up on aHUS/COVID19 JAbs Follow Up
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