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SHUa

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Read more about the article All is quiet on the aHUS naming front

All is quiet on the aHUS naming front

  • Post author:Len Woodward
  • Post published:March 3, 2025
  • Post category:Featured
  • Post comments:1 Comment

For several years now the naming of our disease has been discussed and new names proposed but nothing official has yet…

Continue ReadingAll is quiet on the aHUS naming front
Read more about the article aHUS on rare disease day 2025

aHUS on rare disease day 2025

  • Post author:Len Woodward
  • Post published:February 28, 2025
  • Post category:Events
  • Post comments:0 Comments

This is what Grok AI says about aHUS alliance efforts have been to promote Rare Disease Day 2025 awreness, 1. **Video…

Continue ReadingaHUS on rare disease day 2025
Read more about the article Informação Salva Vidas – SHUa

Informação Salva Vidas – SHUa

  • Post author:Linda Burke
  • Post published:January 23, 2025
  • Post category:Featured
  • Post comments:0 Comments

Informação Salva Vidas - SHUa A informação para pacientes brasileiros com SHUa era quase tão rara quanto a própria doença, mas…

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Read more about the article Modifying the name for aHUS- a to do list?

Modifying the name for aHUS- a to do list?

  • Post author:Len Woodward
  • Post published:January 17, 2025
  • Post category:Featured
  • Post comments:0 Comments

The medical community may not agree on everything but all agree on modifying the disease name aHUS.. A report published in…

Continue ReadingModifying the name for aHUS- a to do list?
Read more about the article FDA has a record about aHUS

FDA has a record about aHUS

  • Post author:Len Woodward
  • Post published:January 10, 2025
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…

Continue ReadingFDA has a record about aHUS
Read more about the article Discontinuation – no longer needing complement inhibition

Discontinuation – no longer needing complement inhibition

  • Post author:Len Woodward
  • Post published:January 8, 2025
  • Post category:Featured
  • Post comments:0 Comments

Complement inhibition treatment discontinuation is a topic that Global Action has led on in the aHUS patient advocacy world for several…

Continue ReadingDiscontinuation – no longer needing complement inhibition
Read more about the article RDD25:  MORE THAN YOU CAN IMAGINE!

RDD25:  MORE THAN YOU CAN IMAGINE!

  • Post author:Len Woodward
  • Post published:January 4, 2025
  • Post category:Uncategorized
  • Post comments:0 Comments

Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…

Continue ReadingRDD25:  MORE THAN YOU CAN IMAGINE!
Read more about the article It’s ChristmaHUS

It’s ChristmaHUS

  • Post author:Len Woodward
  • Post published:December 17, 2024
  • Post category:Featured
  • Post comments:0 Comments

Try the ChristmaHUS Quiz and when you finish join in with the aHUS Christmas Carol. Here’s a 20-question multiple-choice quiz on…

Continue ReadingIt’s ChristmaHUS
Read more about the article Página em Português da Comunidade de SHUa

Página em Português da Comunidade de SHUa

  • Post author:Linda Burke
  • Post published:December 15, 2024
  • Post category:Featured
  • Post comments:0 Comments

Artigo Convidado: Pamela Notario Guest Article: by Pamela Notario (English Version below Portuguese Version) É com grande alegria que lançamos a…

Continue ReadingPágina em Português da Comunidade de SHUa
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