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Read more about the article Atypical HUS: Symptoms can be Perplexing

Atypical HUS: Symptoms can be Perplexing

  • Post author:ahusalliance
  • Post published:March 15, 2018
  • Post category:Featured
  • Post comments:0 Comments

    People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the…

Continue ReadingAtypical HUS: Symptoms can be Perplexing
Read more about the article 4 MYTHS of Rare Disease Advocacy

4 MYTHS of Rare Disease Advocacy

  • Post author:ahusalliance
  • Post published:December 20, 2017
  • Post category:Featured
  • Post comments:0 Comments

              The FIRST Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into…

Continue Reading4 MYTHS of Rare Disease Advocacy
Read more about the article Transplantation and aHUS – a top topic

Transplantation and aHUS – a top topic

  • Post author:ahusalliance
  • Post published:December 18, 2017
  • Post category:Featured
  • Post comments:0 Comments

Transplantation of aHUS dialysis patients is a priority and  top topic for the aHUS alliance. Transplantation of those with aHUS  has…

Continue ReadingTransplantation and aHUS – a top topic
Read more about the article TMA 65 YEARS OLD TODAY

TMA 65 YEARS OLD TODAY

  • Post author:ahusalliance
  • Post published:October 25, 2017
  • Post category:Featured
  • Post comments:0 Comments

It was 65 years ago to day that Prof Symmers taught the world to say TMA. Prof Symmers, or Professor William…

Continue ReadingTMA 65 YEARS OLD TODAY
Read more about the article Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

  • Post author:ahusalliance
  • Post published:October 18, 2017
  • Post category:Featured
  • Post comments:0 Comments

International Nephrology Conference in BUCHAREST, Romania       17 & 18 Nov 2017     In the 1st conference of this type…

Continue ReadingBucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
Read more about the article Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

  • Post author:ahusalliance
  • Post published:October 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)?  You’ve found…

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Read more about the article Thinking More About aHUS Today.

Thinking More About aHUS Today.

  • Post author:ahusalliance
  • Post published:September 24, 2017
  • Post category:Featured
  • Post comments:0 Comments

So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…

Continue ReadingThinking More About aHUS Today.
Read more about the article Videos about aHUS which make you think differently

Videos about aHUS which make you think differently

  • Post author:ahusalliance
  • Post published:September 16, 2017
  • Post category:Featured
  • Post comments:0 Comments

Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…

Continue ReadingVideos about aHUS which make you think differently
Read more about the article aHUS Clinicians & Investigators

aHUS Clinicians & Investigators

  • Post author:ahusalliance
  • Post published:September 13, 2017
  • Post category:Featured/Uncategorized
  • Post comments:1 Comment

Atypical HUS is a very rare and complex disease.  We thank those who collaborate on global aHUS research efforts, and extend…

Continue ReadingaHUS Clinicians & Investigators
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