What is it like from an aHUS patients’ perspective to decide to withdraw from complement inhibitor treatment?
Much is published about stopping complement inhibitor treatment but not from a patients perspective ( except by Global Action)
An article appeared in The Patient publication just recently. It is the third in a series of four articles about stopping eculizumab treatment safely ( SETS ) in the UK .
It has researched what the patients or parents participating in a stopping treatment clinical trial had to say about what they thought about the process of withdrawal
It is an easy read and should resonate with all aHUS patients and families considering stopping treatment stopping.
It needs no explanation.
All should be able to identify with the perspective of at least one participant in this research.
So here is the link to the article itself THE PATIENT
Article No. 758
