Recruiting to aHUS Trials is not easy
Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been…
Atypical HUS Research: NOV 2022 New Additions
There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the…
aHUS at ASN Kidney Week 2022
Early in November in the USA thoughts not just turn to elections but also to Kidney Week. The American Society of…
Atypical HUS in Hong Kong
We’re pleased to offer a third article in our ‘Atypical HUS around the World’ series, which highlights aHUS in Hong Kong…
NEW ZEALAND
“De Novo” aHUS is bad luck
It has been known for decades that what is called " de novo " aHUS can happen to a kidney donor…
You don’t have aHUS any more
You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured.…
Maternal Fetal Medicine: Collaborative Partnerships in TMA Care
We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some…
aHUS clinical trials are not that easy
To answer some of the questions in the aHUS Patients Research Agenda clinical trials will be needed. Take the issue of…
Why aHUS for them and not me
Earlier this year in the series of articles following the Rare Disease Day video one featured a question by Elisabeth from…
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