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Read more about the article Improving outcomes for “aHUS” patients, I was there.

Improving outcomes for “aHUS” patients, I was there.

  • Post author:Len Woodward
  • Post published:October 3, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting…

Continue ReadingImproving outcomes for “aHUS” patients, I was there.
Read more about the article Funds raised by aHUS people contribute to diagnosis research

Funds raised by aHUS people contribute to diagnosis research

  • Post author:Len Woodward
  • Post published:September 24, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Fund raising, which began when aHUSUK still existed, has been put to use to help fund research which may improve the…

Continue ReadingFunds raised by aHUS people contribute to diagnosis research
Read more about the article aHUS Patients’ Qualities -Together

aHUS Patients’ Qualities -Together

  • Post author:Len Woodward
  • Post published:September 24, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS patients are people. People are different. But only aHUS people have had aHUS. It is something they share together. As…

Continue ReadingaHUS Patients’ Qualities -Together
Read more about the article Atypical HUS Facts:  2022 – Sept –  2023

Atypical HUS Facts:  2022 – Sept –  2023

  • Post author:Linda Burke
  • Post published:September 19, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Fact Sheet: 2022 Sept 2023

Continue ReadingAtypical HUS Facts:  2022 – Sept –  2023
Read more about the article The ethics of aHUS treatment trials

The ethics of aHUS treatment trials

  • Post author:Len Woodward
  • Post published:September 15, 2022
  • Post category:Featured
  • Post comments:0 Comments

When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…

Continue ReadingThe ethics of aHUS treatment trials
Read more about the article aHUS Drug Candidates – the 2022 Landscape

aHUS Drug Candidates – the 2022 Landscape

  • Post author:Linda Burke
  • Post published:September 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new…

Continue ReadingaHUS Drug Candidates – the 2022 Landscape
Read more about the article Topics in aHUS Research – Sept 2022

Topics in aHUS Research – Sept 2022

  • Post author:Linda Burke
  • Post published:September 7, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…

Continue ReadingTopics in aHUS Research – Sept 2022
Read more about the article Atypical HUS in Portugal

Atypical HUS in Portugal

  • Post author:Linda Burke
  • Post published:September 5, 2022
  • Post category:Featured
  • Post comments:0 Comments

We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and…

Continue ReadingAtypical HUS in Portugal
Read more about the article *Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

  • Post author:Len Woodward
  • Post published:September 1, 2022
  • Post category:News
  • Post comments:0 Comments

Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…

Continue Reading*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
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