The ethics of aHUS treatment trials
When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…
aHUS Drug Candidates – the 2022 Landscape
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new…
Topics in aHUS Research – Sept 2022
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…
Atypical HUS in Portugal
We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and…
*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…
aHUS in New Zealand
We're so pleased to highlight atypical HUS in New Zealand, with this article written by aHUS family caregiver Anna Benson. No…
Does this genetic variant cause aHUS- Yes or No?
Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…
aHUS Patient Meeting Aug 2022 – USTMA
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held…
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