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Read more about the article Atypical HUS in Hong Kong

Atypical HUS in Hong Kong

  • Post author:Linda Burke
  • Post published:October 29, 2022
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

We’re pleased to offer a third article in our ‘Atypical HUS around the World’ series, which highlights aHUS in Hong Kong…

Continue ReadingAtypical HUS in Hong Kong
Read more about the article “De Novo” aHUS is bad luck
NEW ZEALAND

“De Novo” aHUS is bad luck

  • Post author:Len Woodward
  • Post published:October 22, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

It has been known for decades that what is called " de novo " aHUS can happen to a kidney donor…

Continue Reading“De Novo” aHUS is bad luck
Read more about the article You don’t have aHUS any more

You don’t have aHUS any more

  • Post author:Len Woodward
  • Post published:October 20, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured.…

Continue ReadingYou don’t have aHUS any more
Read more about the article Maternal Fetal Medicine: Collaborative Partnerships in TMA Care

Maternal Fetal Medicine: Collaborative Partnerships in TMA Care

  • Post author:Linda Burke
  • Post published:October 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some…

Continue ReadingMaternal Fetal Medicine: Collaborative Partnerships in TMA Care
Read more about the article aHUS clinical trials are not that easy

aHUS clinical trials are not that easy

  • Post author:Len Woodward
  • Post published:October 11, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

To answer some of the questions in the aHUS Patients Research Agenda clinical trials will be needed. Take the issue of…

Continue ReadingaHUS clinical trials are not that easy
Read more about the article Why aHUS for them and not me

Why aHUS for them and not me

  • Post author:Len Woodward
  • Post published:October 8, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Earlier this year in the series of articles following the Rare Disease Day video one featured a question by Elisabeth from…

Continue ReadingWhy aHUS for them and not me
Read more about the article Improving outcomes for “aHUS” patients, I was there.

Improving outcomes for “aHUS” patients, I was there.

  • Post author:Len Woodward
  • Post published:October 3, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting…

Continue ReadingImproving outcomes for “aHUS” patients, I was there.
Read more about the article Funds raised by aHUS people contribute to diagnosis research

Funds raised by aHUS people contribute to diagnosis research

  • Post author:Len Woodward
  • Post published:September 24, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Fund raising, which began when aHUSUK still existed, has been put to use to help fund research which may improve the…

Continue ReadingFunds raised by aHUS people contribute to diagnosis research
Read more about the article aHUS Patients’ Qualities -Together

aHUS Patients’ Qualities -Together

  • Post author:Len Woodward
  • Post published:September 24, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS patients are people. People are different. But only aHUS people have had aHUS. It is something they share together. As…

Continue ReadingaHUS Patients’ Qualities -Together
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