Atypical HUS in Hong Kong
We’re pleased to offer a third article in our ‘Atypical HUS around the World’ series, which highlights aHUS in Hong Kong…
NEW ZEALAND
“De Novo” aHUS is bad luck
It has been known for decades that what is called " de novo " aHUS can happen to a kidney donor…
You don’t have aHUS any more
You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured.…
Maternal Fetal Medicine: Collaborative Partnerships in TMA Care
We were pleased to recently welcome Dr Richard Burwick (California, USA) to our global network of aHUS clinicians and investigators. Some…
aHUS clinical trials are not that easy
To answer some of the questions in the aHUS Patients Research Agenda clinical trials will be needed. Take the issue of…
Why aHUS for them and not me
Earlier this year in the series of articles following the Rare Disease Day video one featured a question by Elisabeth from…
Improving outcomes for “aHUS” patients, I was there.
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting…
Funds raised by aHUS people contribute to diagnosis research
Fund raising, which began when aHUSUK still existed, has been put to use to help fund research which may improve the…
aHUS Patients’ Qualities -Together
aHUS patients are people. People are different. But only aHUS people have had aHUS. It is something they share together. As…
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