Evaluating ravulizumab for aHUS treatment
Article No. 442 23 June 2021 Today NICE ( The National Institute for Health and Care Excellence) concluded its evaluation of…
Decision Process: Discontinuing aHUS Treatment
Article No 441 18 June 2021 What topics and questions are likely to frame conversations about treating patients who…
Questioning seldom heard aHUS answers
Article No. 440 11 June 2021 Sometimes aHUS alliances Global Action sees things written about aHUS on the internet which are …
aHUS webinar by Marina Noris
Article No. 438 6 June 2021 Marina ( left ) with some of the team in Bergamo Another ERKNet…
A pillar of aHUS hope
Article No. 438 1 June 2021 One of six pillars of hope for those with a rare disease, is having a…
Kidney Disease & Dental Health
Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.
FRANCE
SHUA - SYNDROME HÉMOLYTIQUE ET URÉMIQUE ATYPIQUE FRANCE
Eculizumab aHUS treatment: PESaM
Article No. 436 21 May 2021 It is amazing sometimes what you can find on the internet when searching for…
UNITED ARAB EMIRATES
England recommends Ravulizumab for aHUS
Article No. 435 20 May 2021 There is a saying that "you can wait ages for a London bus but then…
Scotland Approves Ravulizumab for aHUS
Article No. 434 10 May 2021 The Scottish Medicines Consortium (SMC) has approved the use of Ravulizumab for treating aHUS in…
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