Alexion holds Blood Drive for aHUS Day 2019
Alexion Pharmaceuticals holds corporate blood donation drive to mark aHUS Awareness Day, 24 Sept 2019.
aHUS Awareness Day 2019 -Video
2019 aHUS Awareness Day - Atypical HUS families around the world are invited to participate in this aHUS Alliance outreach & advocacy project for 24 September. Slideshow project details for patients and caregivers affected by the rare disease aHUS.
2019 aHUS Awareness Day -24 Sept
24 September 2019 marks the 5th annual aHUS Awareness Day, created by the aHUS Alliance to raise visibility for issues and needs of those impacted by the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS). 'Family and Community Support' is this year's theme, with a 2019 global Call to Action: Support for blood & organ donation.
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Another year has ended for those affected by aHUS. For some sadly it would have proven to have been their last.…
aHUS Awareness Day 2018 – The Video
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Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)? You’ve found…
Thinking More About aHUS Today.
So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…
aHUS Day video- Thoughts for Doctors
The aHUS alliance has put out its aHUS Awareness Day video for 2017. 72 patients, or family members, from 18…
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Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…