aHUS “How To” – Find Atypical HUS Research
It can be a struggle to find information about medical conditions if you’ve been diagnosed with a rare disease, and…
Thinking More About aHUS Today.
So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…
Videos about aHUS which make you think differently
Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…
AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…
Genetic testing for all? :Discuss
* To have genetic tests for all aHUS patients and families featured in the Rare Disease Day video ( see here).…
Complement over and under Complementing
One of the simplest and clearest overview images to illustrate the Complement system is provided by an organisation called Euro Diagnostica…
Why is Complement “Complement” ?
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who…
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…
Vision Issues & aHUS
It’s difficult for rare disease patients to find information about their condition and even more so for patients with medical…