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eculizumab

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Read more about the article “De Novo” aHUS is bad luck
NEW ZEALAND

“De Novo” aHUS is bad luck

  • Post author:Len Woodward
  • Post published:October 22, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

It has been known for decades that what is called " de novo " aHUS can happen to a kidney donor…

Continue Reading“De Novo” aHUS is bad luck
Read more about the article Funds raised by aHUS people contribute to diagnosis research

Funds raised by aHUS people contribute to diagnosis research

  • Post author:Len Woodward
  • Post published:September 24, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Fund raising, which began when aHUSUK still existed, has been put to use to help fund research which may improve the…

Continue ReadingFunds raised by aHUS people contribute to diagnosis research
Read more about the article The ethics of aHUS treatment trials

The ethics of aHUS treatment trials

  • Post author:Len Woodward
  • Post published:September 15, 2022
  • Post category:Featured
  • Post comments:0 Comments

When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…

Continue ReadingThe ethics of aHUS treatment trials
Read more about the article TMAs and aHUS illustrated

TMAs and aHUS illustrated

  • Post author:Len Woodward
  • Post published:July 31, 2022
  • Post category:News
  • Post comments:0 Comments

Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…

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Read more about the article Future effects of aHUS and its treatment

Future effects of aHUS and its treatment

  • Post author:Len Woodward
  • Post published:May 11, 2022
  • Post category:Featured
  • Post comments:0 Comments

A number of questions in the RDD2022 video are about what will happen to patients in the future due to the…

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Read more about the article aHUS care pathway

aHUS care pathway

  • Post author:Len Woodward
  • Post published:May 10, 2022
  • Post category:Featured
  • Post comments:0 Comments

The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…

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Read more about the article Side effects of ravulizimab between infusions

Side effects of ravulizimab between infusions

  • Post author:Len Woodward
  • Post published:May 7, 2022
  • Post category:News
  • Post comments:0 Comments

Ravulizumab is more widely used these days, particularly in the PNH community. Apart from the longer infusion intervals PNH patients benefit…

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Read more about the article Monitoring after Eculizumab withdrawal

Monitoring after Eculizumab withdrawal

  • Post author:Len Woodward
  • Post published:April 4, 2022
  • Post category:Featured
  • Post comments:0 Comments

This article marks the 500th website news “blog” since it went live nearly six years ago. That milestone is marked by…

Continue ReadingMonitoring after Eculizumab withdrawal
Read more about the article When to transition from eculizumab to ravulizumab

When to transition from eculizumab to ravulizumab

  • Post author:Len Woodward
  • Post published:March 24, 2022
  • Post category:Featured
  • Post comments:0 Comments

Ravulizumab is eculizumab, Carsten. They work the same way. It is the same monoclonal antibody. It has just been modified in…

Continue ReadingWhen to transition from eculizumab to ravulizumab
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