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eculizumab

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Read more about the article COVID 19 triggers aHUS

COVID 19 triggers aHUS

  • Post author:ahusalliance
  • Post published:July 12, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 444 12 July 2021 Not unexpectedly, as aHUS Global Action had postulated it in March last year, a COVID…

Continue ReadingCOVID 19 triggers aHUS
Read more about the article Evaluating ravulizumab for aHUS treatment

Evaluating ravulizumab for aHUS treatment

  • Post author:ahusalliance
  • Post published:June 23, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 442 23 June 2021 Today NICE ( The National Institute for Health and Care Excellence) concluded its evaluation of…

Continue ReadingEvaluating ravulizumab for aHUS treatment
Read more about the article Decision Process: Discontinuing aHUS Treatment 

Decision Process: Discontinuing aHUS Treatment 

  • Post author:Linda Burke
  • Post published:June 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No 441 18 June 2021      What topics and questions are likely to frame conversations about treating patients who…

Continue ReadingDecision Process: Discontinuing aHUS Treatment 
Read more about the article aHUS Trial Watch 12 (crovalimab update)

aHUS Trial Watch 12 (crovalimab update)

  • Post author:ahusalliance
  • Post published:May 7, 2021
  • Post category:Featured
  • Post comments:1 Comment

Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…

Continue ReadingaHUS Trial Watch 12 (crovalimab update)
Read more about the article aHUS uncertainty is a certainty

aHUS uncertainty is a certainty

  • Post author:ahusalliance
  • Post published:March 16, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 423 16 March 2021 Update: Seven days after this news blog was published a further report on the ravulizumab…

Continue ReadingaHUS uncertainty is a certainty
Read more about the article aHUS Relapse: Expect the Unexpected

aHUS Relapse: Expect the Unexpected

  • Post author:ahusalliance
  • Post published:February 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS Relapse: A Family View. Second in a 3-part series about how one family experienced the challenges of having this rare disease recur after many years 'off treatment.

Continue ReadingaHUS Relapse: Expect the Unexpected
Read more about the article BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly

BB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly

  • Post author:ahusalliance
  • Post published:January 23, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No 413 23 January 2021 Very few people have heard of BB5.1 nor even  c.3643C>G; p. Arg1215Gly. Yet both are of…

Continue ReadingBB5.1 aHUS connection to c.3643C>G; p. Arg1215Gly
Read more about the article TMA-Semantics are important

TMA-Semantics are important

  • Post author:ahusalliance
  • Post published:December 12, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 402 12 December 2020 Just over a year ago aHUS Global Action featured a series of articles "aHUS is…

Continue ReadingTMA-Semantics are important
Read more about the article Help needed to join the aHUS dots

Help needed to join the aHUS dots

  • Post author:ahusalliance
  • Post published:November 25, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…

Continue ReadingHelp needed to join the aHUS dots
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