aHUS Patient Numbers :RDD 25 Video Insights
Remember in the COVID years of 2020 and 2021 the media was plastered with COVID patient numbers. They were ubiquitous and…
RDD25: MORE THAN YOU CAN IMAGINE!
Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…
aHUS Project for 2024 Rare Disease Day
Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2024aHUS While Rare Disease Day is marked…
aHUS what is really happening?
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
Rare Disease Day 2023- aHUS Community Project
On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on…
That was the aHUS Rare Disease Day Video that was
65 questions, 29 article blogs with answers to the questions published between 7 March and 16 May and over 300 views…
RD Day 2022: aHUS Webinar hosted by AKF
In honor of this year's Rare Disease Day on February 28, the American Kidney Fund (AKF) will be hosting “Rare Disease…
aHUS Project for 2022 Rare Disease Day
Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.
Global aHUS Action for 2021 Rare Disease Day
aHUS Alliance Global Action, update - On 28 February 2021 our slideshow launched, featuring 107 very special people from…