aHUS is confusing
Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…
aHUS what is really happening?
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…
HST TMA Is It aHUS ?
- An Hematopoietic Stem Cell Transplant (HSCT) is a way to treat some malignant and benign diseases. The transplant replaces disease…
Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”
It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…
Recruiting to aHUS Trials is not easy
Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been…
aHUS at ASN Kidney Week 2022
Early in November in the USA thoughts not just turn to elections but also to Kidney Week. The American Society of…
NEW ZEALAND
“De Novo” aHUS is bad luck
It has been known for decades that what is called " de novo " aHUS can happen to a kidney donor…
You don’t have aHUS any more
You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured.…
aHUS clinical trials are not that easy
To answer some of the questions in the aHUS Patients Research Agenda clinical trials will be needed. Take the issue of…
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