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Read more about the article Health economics and stopping eculizumab treatment safely

Health economics and stopping eculizumab treatment safely

  • Post author:Len Woodward
  • Post published:August 30, 2025
  • Post category:News
  • Post comments:0 Comments

A second article in a series of four planned has just been published. It is about the health economics of treatment…

Continue ReadingHealth economics and stopping eculizumab treatment safely
Read more about the article Welcoming another country to the “Global aHUS Town”

Welcoming another country to the “Global aHUS Town”

  • Post author:Len Woodward
  • Post published:August 21, 2025
  • Post category:News
  • Post comments:0 Comments

In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…

Continue ReadingWelcoming another country to the “Global aHUS Town”
Read more about the article Stopping aHUS Treatment Safely

Stopping aHUS Treatment Safely

  • Post author:Len Woodward
  • Post published:August 14, 2025
  • Post category:News
  • Post comments:0 Comments

It is over a decade ago now but I still recall vividly when, at the first meeting of what would become…

Continue ReadingStopping aHUS Treatment Safely
Read more about the article Global aHUS Neighbours – Nepal moves in to aHUS Town.

Global aHUS Neighbours – Nepal moves in to aHUS Town.

  • Post author:Len Woodward
  • Post published:July 10, 2025
  • Post category:Featured
  • Post comments:0 Comments

Visitors to the aHUS alliance Global Action website may have observed a new feature on our home page. Yes a world…

Continue ReadingGlobal aHUS Neighbours – Nepal moves in to aHUS Town.
Read more about the article India had its first aHUS patient conference- what next

India had its first aHUS patient conference- what next

  • Post author:Len Woodward
  • Post published:July 3, 2025
  • Post category:Featured/News
  • Post comments:0 Comments

India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…

Continue ReadingIndia had its first aHUS patient conference- what next
Read more about the article Is this the beginning of the end of an aHUS journey in India?

Is this the beginning of the end of an aHUS journey in India?

  • Post author:Len Woodward
  • Post published:June 28, 2025
  • Post category:News
  • Post comments:0 Comments

Frequently these days people talk about their "journey". I have known of the journey of an aHUS patient in India for…

Continue ReadingIs this the beginning of the end of an aHUS journey in India?
Read more about the article Advocacy for aHUS and “aHUSs”

Advocacy for aHUS and “aHUSs”

  • Post author:Len Woodward
  • Post published:June 19, 2025
  • Post category:Featured
  • Post comments:0 Comments

When it comes to advocacy why say there is aHUS and there is also aHUSs? The rare disease aHUS is described…

Continue ReadingAdvocacy for aHUS and “aHUSs”
Read more about the article Mastermind on aHUS

Mastermind on aHUS

  • Post author:Len Woodward
  • Post published:June 13, 2025
  • Post category:Featured
  • Post comments:0 Comments

Imagine atypical haemolytic uraemic syndrome or aHUS on a well know quiz show, say Mastermind. How would it look?--- The Mastermind…

Continue ReadingMastermind on aHUS
Read more about the article Pregnancy Associated TMA: a Start to Nomenclature Revision

Pregnancy Associated TMA: a Start to Nomenclature Revision

  • Post author:Linda Burke
  • Post published:June 2, 2025
  • Post category:Featured
  • Post comments:0 Comments

It’s amazing how quickly medicine advances. For patients with some diagnoses, it seems like aspects such as new treatments or ‘standard…

Continue ReadingPregnancy Associated TMA: a Start to Nomenclature Revision
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