Health economics and stopping eculizumab treatment safely
A second article in a series of four planned has just been published. It is about the health economics of treatment…
A second article in a series of four planned has just been published. It is about the health economics of treatment…
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
It is over a decade ago now but I still recall vividly when, at the first meeting of what would become…
Visitors to the aHUS alliance Global Action website may have observed a new feature on our home page. Yes a world…
India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…
Frequently these days people talk about their "journey". I have known of the journey of an aHUS patient in India for…
When it comes to advocacy why say there is aHUS and there is also aHUSs? The rare disease aHUS is described…
Imagine atypical haemolytic uraemic syndrome or aHUS on a well know quiz show, say Mastermind. How would it look?--- The Mastermind…
It’s amazing how quickly medicine advances. For patients with some diagnoses, it seems like aspects such as new treatments or ‘standard…