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Read more about the article A call for interest in joining the aHUS CAB

A call for interest in joining the aHUS CAB

  • Post author:Len Woodward
  • Post published:February 6, 2023
  • Post category:News
  • Post comments:0 Comments

This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…

Continue ReadingA call for interest in joining the aHUS CAB
Read more about the article aHUS is confusing

aHUS is confusing

  • Post author:Len Woodward
  • Post published:February 4, 2023
  • Post category:News
  • Post comments:0 Comments

Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…

Continue ReadingaHUS is confusing
Read more about the article aHUS what is really happening?

aHUS what is really happening?

  • Post author:Len Woodward
  • Post published:January 21, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening…

Continue ReadingaHUS what is really happening?
Read more about the article *Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

  • Post author:Len Woodward
  • Post published:September 1, 2022
  • Post category:News
  • Post comments:0 Comments

Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…

Continue Reading*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Read more about the article TMAs and aHUS illustrated

TMAs and aHUS illustrated

  • Post author:Len Woodward
  • Post published:July 31, 2022
  • Post category:News
  • Post comments:0 Comments

Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…

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Read more about the article KDIGO – aHUS controversies and consensus

KDIGO – aHUS controversies and consensus

  • Post author:Len Woodward
  • Post published:July 26, 2022
  • Post category:News
  • Post comments:0 Comments

Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…

Continue ReadingKDIGO – aHUS controversies and consensus
Read more about the article Trial watch  16 -Factor D complement inhibitor.

Trial watch 16 -Factor D complement inhibitor.

  • Post author:Len Woodward
  • Post published:July 13, 2022
  • Post category:News
  • Post comments:0 Comments

One of the ways to find out which drugs have a potential for aHUS treatment is to look at trials for…

Continue ReadingTrial watch 16 -Factor D complement inhibitor.
Read more about the article aHUS Trial Watch 15 ( Iptacopan) update

aHUS Trial Watch 15 ( Iptacopan) update

  • Post author:Len Woodward
  • Post published:July 12, 2022
  • Post category:News
  • Post comments:0 Comments

Global Action featured a new trial for an aHUS treatment iptacopan earlier this year ( CLICK ON IMAGE BELOW) aHUS Trial…

Continue ReadingaHUS Trial Watch 15 ( Iptacopan) update
Read more about the article aHUS Day 2022: Awareness Through Togetherness

aHUS Day 2022: Awareness Through Togetherness

  • Post author:Linda Burke
  • Post published:July 11, 2022
  • Post category:News
  • Post comments:1 Comment

The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re…

Continue ReadingaHUS Day 2022: Awareness Through Togetherness
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